A few days ago a news came that a five-month-old baby girl, Tira, is suffering from a serious disease like spinal muscular atrophy (SMA). And to save her life, there is an injection of Rs 22 crore. For which Rs. 16 crores was given by the public as donations, while Prime Minister Modi waived 6 crores of tax.
A girl like Teera has also appeared in Meerut, Uttar Pradesh. This girl named Ishani Verma is one and a half years old. Ishani also suffers from a serious illness spinal muscular atrophy (SMA) type 2. Ishani is undergoing treatment at AIIMS in Delhi and for her life, Zolgensma injection of Rs 22 crore is to be injected. It is impossible for Ishani’s family to get such an expensive injection, but like Teera’s parents, Ishani’s father has also sought help from people on social media.
Ishani is from Brahmapuri
Ishani hails from Brahmapuri area of Meerut. Ishani’s father Abhishek Verma works in a private company, while Mata is a housewife. Ishani was born on 27 August 2019. Ishani’s father Abhishek told that
For seven or eight months after birth, Ishani was like a normal child, but after that her legs started moving slowly and slowly. She is now one and a half years old. At this time, she cannot move her leg at all. A slight movement occurs in the feet. At the same time, the effect of this disease started coming in Ishani’s hands as well. The upright arm moves very little.
Abhishek Verma said that he had gone to AIIMS on December 26 with Ishani, but was told to wait there till July. After this, he went to Gangaram Hospital with Ishani. Gave her blood sample here on 26 December. The report came on 12 January and doctors confirmed Spinal Muscular Atrophy (SMA) Stage 2.
Ishani’s father told that the daughter has only one medicine for this disease, which costs Rs 16 crore. In such a situation, he used Milap and Impact Guru to raise funds.
The Swiss company Novartis prepares Zolgensma injections. It costs 16 crores + 8 crores tax. The Novartis company offers this medicine to 50 people around the world for free, but it is available only to randomly selected patients. Waiting for her can be dangerous for the daughter’s life. That is why they have requested help from the countrymen.
What is SMA disease?
If spinal muscular atrophy (SMA) disease occurs, the body does not have protein-producing genes. This causes the muscles and nerves to end. The activity of the brain muscles also starts decreasing. Since all the muscles operate from the brain, there is difficulty in breathing and even chewing food. There are many types of SMA, but Type 1 is the most serious.
Spinal muscular atrophy (SMA) is a neuro muscular disorder. It is a genetic disease that reaches the next generation when there is a gene defect. When this disorder occurs in a child, his body gradually starts to weaken. He doesn’t know then The control of the child on the muscles of the body starts to end, because of this, movement is not possible in many parts of the body.
There are 5 types of spinal muscular atrophy
Type-0: It occurs when the child is in the stomach. Right from birth, there is joint pain in the baby. However, such cases are rarely seen in the world.
Type-1: When this happens, without any help, the child will not be able to move his head. The arms and legs remain loose. There is also difficulty in swallowing anything. Tira is struggling with this.
Type-2: Its cases are reported in a child of 6 to 18 months. More impact on the hands is seen on the feet. As a result, they are unable to stand. Ishani is struggling with this.
Type-3: symptoms seen in people aged 2–17 years. The impact of the disease appears less than in Type-1 and 2 but wheelchairs may be needed in future.
Type-4: This type of spinal muscular atrophy is seen in adults. Muscles become weak and there is difficulty in breathing. Arms and legs
Why does this happen
When spinal muscular atrophy occurs, the brain’s nerve cells and spinal cord (spinal cord) begin to get damaged. In such a situation, sending messages to control the brain muscles (brain muscles) gradually stops. As the disease progresses, the child stops moving.
Till now no exact treatment has been found for this disease, only to try to reduce its effect through medicines. However, it is being claimed that a single dose of Zolgensma injection can cure the disease. This injection is to be made by Ishani, but it costs Rs 22 crore (Rs 6 crore tax).
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